Brain Tumors Log Out | Topics | Search
Moderators | Edit Profile

Zodiackiller.com Message Board » General Discussion » Other » Brain Tumors « Previous Next »

Author Message
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Saturday, September 23, 2006 - 6:46 am:   

Has anybody here ever had a brain Tumor? The pituitary gland to be particular?
Top of pagePrevious messageNext messageBottom of page Link to this message

Oklahoma_mike
Username: Oklahoma_mike

Registered: 5-2006
Posted on Saturday, September 23, 2006 - 10:57 pm:   

My sister died from a brain tumor, but it was not in the pituitary. If a tumor is right in the pituitary it is usually operable and, believe it or not, through the nose. My sister's tumor was of a type that is almost always fatal.
Good luck to you.
Top of pagePrevious messageNext messageBottom of page Link to this message

Douglas_oswell
Username: Douglas_oswell

Registered: 4-2006
Posted on Saturday, September 23, 2006 - 11:37 pm:   

There's good information about pituitary tumors right on the web. One thing I gathered from a casual search was that tumors of the pituitary are relatively common and usually benign, although they can wreak havoc with the rest of the body by interfering with the pituitary's hormonal output. Supposedly they are usually curable (depending on one's age and health status) with radiation, drugs and surgery.
Top of pagePrevious messageNext messageBottom of page Link to this message

Racerx
Username: Racerx

Registered: 7-2006
Posted on Sunday, September 24, 2006 - 4:12 am:   

My brother had a brain tumor for many years, it was operable; he chose not to have surgery. He passed away less than a month ago.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Sunday, September 24, 2006 - 4:58 am:   

I found out Thursday evening about my tumor. I read that in most cases they are benign. I don't know if its cancerous yet. I'm being refered to a specialist. I try not to worry about it. Sorry for your brother Racerx and your sister Mike.
Top of pagePrevious messageNext messageBottom of page Link to this message

Douglas_oswell
Username: Douglas_oswell

Registered: 4-2006
Posted on Sunday, September 24, 2006 - 6:38 am:   

I wish you good fortune, James. I'd be willing to be that everything is going to turn out allright.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Sunday, September 24, 2006 - 9:51 am:   

I appreciate that Doug!
Top of pagePrevious messageNext messageBottom of page Link to this message

Warren
Username: Warren

Registered: 4-2006
Posted on Sunday, September 24, 2006 - 10:03 am:   

James, my niece has a pituitary tumor, was operated on and is fine now. No problems.

I don't know where you live but if it appears to be trouble, please come down to M.D. Anderson Hospital in Houston. The world's best.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Sunday, September 24, 2006 - 1:43 pm:   

I live in NC. Glad to hear your niece is okay.
Top of pagePrevious messageNext messageBottom of page Link to this message

Colette
Username: Colette

Registered: 4-2006
Posted on Sunday, September 24, 2006 - 5:45 pm:   

I worked with a gal who had one. They too operated through her nose. She recovered well and went on to have a child. It's been 20 years since her surgery and has no problems. Just find a surgeon who has experience with this type of surgey. My friend traveled to another state for hers.
Top of pagePrevious messageNext messageBottom of page Link to this message

Johno
Username: Johno

Registered: 4-2006
Posted on Sunday, September 24, 2006 - 11:41 pm:   

These type of tumors apparently account for 10% of all brain tumors and the majority of patients are successfully treated through microsurgical techniques.
Neurosurgery is available at the NeuroOncology department of UNC Chapel Hill and the Pituitary Tumor Center at Wake Forest University Baptist Medical Center and both are said to be world class facilities.
Good luck with that and keep us posted on your recovery.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Monday, September 25, 2006 - 3:32 am:   

I appreciate that Johno and Thankyou to everybody for their stories and advice.
Top of pagePrevious messageNext messageBottom of page Link to this message

Sandy
Username: Sandy

Registered: 4-2006
Posted on Wednesday, September 27, 2006 - 12:00 pm:   

James 78 I am so sorry to hear about your tumor. My brother in law was told that he had one in the late 60's, he didn't do anything about it and it went away. I don't suggest doing that! If you live near S.F. please go to UCSF it is the best.My prayers are with you, stay strong it works ! Please keep us informed as to how you are doing.If you don't live near SF and would like to go there for treatment , I have a spare room if you need one.
Top of pagePrevious messageNext messageBottom of page Link to this message

Sandy
Username: Sandy

Registered: 4-2006
Posted on Wednesday, September 27, 2006 - 12:15 pm:   

James78, I am sorry to hear about your tumor. My brother in law had one in the same area many yrs ago that just went away on its own ! I don't suggest not getting treatment. Staying strong is very important. If you live near S.F. then UCSF is the very best hospital in the area.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Wednesday, September 27, 2006 - 7:15 pm:   

I appreciate it Sandy, although I live on the opposite side of the country. I am trying to get in with a specialist, but I have to wait 3 months for an opening so Im currently trying elsewhere. Its nice to know that people care! I will keep you informed. Thanks again!
Top of pagePrevious messageNext messageBottom of page Link to this message

Oklahoma_mike
Username: Oklahoma_mike

Registered: 5-2006
Posted on Wednesday, September 27, 2006 - 9:14 pm:   

My sister was treated at the Mayo Clinic in Rochestor, MN, and I was with her when a biopsy was done to confirm the diagnosis in 1990. I remember another patient on the floor was a woman with a pituitary tumor which was removed through her nose. I spoke with her husband off and on in the waiting rooms for a few days. My sister had a very different type of tumor, which was malignant and inoperable. Still, with radiation treatment she lived another 4 years and half of that time was good time, she went on vacation with my wife and I to Mexico to see a solar eclipse in 1991 and the next year took a trip to europe.
The lady with the pituitary tumor came through her surgery just fine and her huysband said she was alert and normal as soon as the anasthesia wore off. One good thing about the pituitary is that while half is nev=rvous tissue and half glandular tissue, it is not DIRECTLY part of brain activity as the rest of the brain is. Meaning that patients who have surgery on the pituitary very rarely have neurological complications like loss of memory, changes in personality, etc. The hardest part afterward is often regulating the hormones, and I don't mean in a sexual nature, as the pituitary actually controls most of the other glands of the body!
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Wednesday, October 11, 2006 - 12:01 pm:   

I went to the Doctor on monday. Doc gave me a prescription to help with the testosterone. They will monitor the tumor and if it grows, then it will have to come out.
Top of pagePrevious messageNext messageBottom of page Link to this message

Ed_neil
Username: Ed_neil

Registered: 5-2006
Posted on Wednesday, October 11, 2006 - 3:44 pm:   

I hope everything goes well, James!
Top of pagePrevious messageNext messageBottom of page Link to this message

Oklahoma_mike
Username: Oklahoma_mike

Registered: 5-2006
Posted on Wednesday, October 11, 2006 - 8:31 pm:   

Sounds like good news, if the tumor is not that big you caught it early and it can be monitored as you say. Good to know it is not bad enough at this time for surgery, it might never get big enough to be life threatening. Keep us posted and good fortune to you.
Top of pagePrevious messageNext messageBottom of page Link to this message

Racerx
Username: Racerx

Registered: 7-2006
Posted on Thursday, October 12, 2006 - 11:35 am:   

Ditto.
Top of pagePrevious messageNext messageBottom of page Link to this message

Scott_ben
Username: Scott_ben

Registered: 7-2006
Posted on Thursday, October 12, 2006 - 1:19 pm:   

I had a tumor on my spine. Which has to be treated the same as a brain tumor because its all part of the central nervous system. It was not fun but I went through the surgery. I recomend doing the same. Don't put it off just because it may be beign. It doesn't really matter with the brain or the spine as it grows it will create damage. Just my two cents! Get rid of it and be done with it. Over and gone!!
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Thursday, October 12, 2006 - 2:17 pm:   

I appreciate the positive words! I've thought about getting it out now, I haven't made up my mind. It is as the Doc says,benign,so I shall trust him. Taking a prescription the whole time the tumor is there, is not really what I want to do. I want to let the holidays pass and then I'll make up my mind. He says I'm in no danger right now. Thankyou!
Top of pagePrevious messageNext messageBottom of page Link to this message

Johno
Username: Johno

Registered: 4-2006
Posted on Thursday, October 12, 2006 - 2:31 pm:   

I'd go with Scott ben on this one as well. Check with one of those nuerosurgery centers in North Carolina that specialize in these kind of tumors to see if they agree with your doctor. Just for the sake of a second opinion from a specialist. Laser surgery now has got to be better than scalpal surgery later.
Top of pagePrevious messageNext messageBottom of page Link to this message

L2829tad
Username: L2829tad

Registered: 4-2006
Posted on Tuesday, October 17, 2006 - 12:17 pm:   

You are in my prayers "J78"
Top of pagePrevious messageNext messageBottom of page Link to this message

L2829tad
Username: L2829tad

Registered: 4-2006
Posted on Tuesday, October 17, 2006 - 12:48 pm:   

Holy Heavenly Father,Please Hear These Humble Words.I Ask For Total Redemption Of The Works Of My Friend,,, JAMES78,,,,Please take care......
.........LATER........thardu........
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Tuesday, October 17, 2006 - 5:06 pm:   

I appreciate that Buddy Thardu! I'm applying Testim Gel and starting Thyroid medication Tomorrow. I think Im going to ask for surgery after the Holidays. Thankyou!
Top of pagePrevious messageNext messageBottom of page Link to this message

Johno
Username: Johno

Registered: 4-2006
Posted on Tuesday, October 17, 2006 - 5:42 pm:   

James, you're from Wisconsin so you can appreciate this.

What's another term meaning "Beer Belly" in Wisconsin?
"Milwaukee Tumor."
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Wednesday, October 18, 2006 - 2:33 pm:   

Thats pretty funny!
Top of pagePrevious messageNext messageBottom of page Link to this message

Muskogee
Username: Muskogee

Registered: 5-2006
Posted on Thursday, October 19, 2006 - 3:41 pm:   

James, my brother was just worked up for the same diagnosis. From a doctor's perspective, it's common, easy to deal with, and rarely malignant. From a patient's perspective, it's scary-as-hell.

Please let me know if I can be of any help during this trying time. Call or email anytime.
Top of pagePrevious messageNext messageBottom of page Link to this message

Vallejo_dave
Username: Vallejo_dave

Registered: 4-2006
Posted on Thursday, October 19, 2006 - 4:15 pm:   

Good luck James.

Did you hear the one about "The beer that made Milt Famee walk us?"
Top of pagePrevious messageNext messageBottom of page Link to this message

Deoxys
Username: Deoxys

Registered: 5-2006
Posted on Thursday, October 19, 2006 - 4:40 pm:   

Ditto all that, James. Best of luck...
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Thursday, October 19, 2006 - 7:40 pm:   

Thanks Muskogee! Hope your brother does well. I'm doing okay, its scary to think about surgery, but it does seem common, just never knew anybody that had a tumor. Never heard that one Dave! Thanks for the support. I try thinking about visiting home and I cant wait, it'll be 3 month's. I can't tell my Mother about the tumor, because she would fall over before I could explain! Thanks!
Top of pagePrevious messageNext messageBottom of page Link to this message

Muskogee
Username: Muskogee

Registered: 5-2006
Posted on Friday, October 20, 2006 - 3:20 pm:   

James, I forgot to mention, I agree with the other posters who have suggested getting a second opinion. It's not that I doubt your current doc...he's probably great and has probably given you the best treatment option. However, before any major action is taken, it doesn't hurt to have the diagnosis "verified" by an independent surgeon (meaning someone outside of your current doctor's practice and hospital affiliation, if possible). Your first doc should not have a problem with you seeking a second opinion (and, if he does, I'd probably steer clear of him).

Surgery vs. medication for this type of tumor is based on the size of the tumor, among other things. While imaging techniques are spectacular, they are not 100% correct all the time...a tumor can look larger or smaller than it really is, depending on a number of factors. Having another doc verify the size of the tumor and course of treatment can be very reassuring.

Of course, if your second opinion doc comes to a different conclusion than your first doc, the situation gets confusing quickly, so it's a double-edged sword. This is what happened with my brother, who now needs to get a third opinion.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Friday, October 20, 2006 - 5:58 pm:   

Are you saying I should get another MRI? Or suggesting? I have an appointment if it didn't get cancelled by the family physician at Baptist hospital in Winston/salem. A better Doc I'm sure,but I was coming increasingly fatigued and needed some sort of treatment. My thoughts are that I don't want to take meds for 1 or 2 years and then it comes out anyway. I'd rather spare my body and get the surgery. Now I've given it thought and it bothers me,I take it very seriously! I believe a second opinion is needed. Thankyou
Top of pagePrevious messageNext messageBottom of page Link to this message

Douglas_oswell
Username: Douglas_oswell

Registered: 4-2006
Posted on Friday, October 20, 2006 - 6:28 pm:   

I'll second what Muskogee says, James. I haven't had too many bad experiences with the medical profession, but the dental professional has screwed me over royally. Just earlier this year, for example, I started having trouble with severe pain in one of my lower left molars--I wasn't sure which one it was because pain tends to be very generalized in that area. Of the last two molars in that area, one had an elaborate filling and the other was crowned. My family dentist suggested that it was probably the former, and that the nerve was in the process of dying. He referred me to a local endodontist. I went to the endodondist who spent all of two minutes diagnosing where the pain was coming from. He applied some cold substance to the far back tooth (the one my family dentist had suspected) and when I didn't respond to the stimulus, immediately concluded that the problem was coming from the one next to it; the one with the crown. He was wrong. The tooth wasn't cold sensitive, but it was pressure sensitive. Instead of doing the same test on the crowned tooth, or a simple pressure test, he told me he'd "spare me the agony" of testing it. I took him at his word, and he proceeded to root canal the wrong tooth. A week later, when I was still experiencing severe pain, I concluded the obvious. He refused to take responsibility for his mistake, saying that the crowned tooth was probably a candidate for root canal as well. I was out the $900 for the procedure, plus I lost the culprit molar because on second inspection my family dentist concluded that the prospects for saving it were poor. Now I'm going to be out another $900 for a partial.

Never assume that a person who calls himself a "professional" is acting strictly in your interest, or that his level of competence precludes him from making mistakes. The medical profession is hugely complicated and encompasses an incredible array of disciplines and abilities that are beyond the capabilitiy of any human being to completely comprehend. Understand, too, that medical professionals are human beings with human motives and human failings, too. They will not be the ones to suffer physical disability if they injure you through indifference, incompetence or impetuosity. So, yes, get a second opinion.
Top of pagePrevious messageNext messageBottom of page Link to this message

L2829tad
Username: L2829tad

Registered: 4-2006
Posted on Sunday, October 22, 2006 - 1:13 am:   

All, Anyone believe in the power of prayer ?
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Sunday, October 22, 2006 - 8:52 am:   

Sure I do everyday. God put doctors and medicine on this earth and I pray I get the right combination.
Top of pagePrevious messageNext messageBottom of page Link to this message

Tom_voigt
Username: Tom_voigt

Registered: 4-2006
Posted on Monday, October 23, 2006 - 10:06 am:   

I received this e-mail about a week ago:

"Hi Tom:

I just came across the question one of your participants on the message
board wrote about a brain tumor on the pituitary gland.

I had one about 2 years ago - non cancerous. It was located over the
pituitary gland and was about the size of a large grapefruit (!!). I
was operated on and I can tell you i have had more discomfort with a
hangnail. There was no pain or discomfort whatsoever. I was in the
hospital about 10 days and was discharged without medication of any
kind. I found I felt a bit slow thinking , vocabulary, words I wanted
to use to express myself I couldn't come up with them. On the 4th day
after my surgery I did a cryptoquote ( a letter substitution puzzle) and
did it in about 10 minutes, the next day it took me about 5 minutes. I
did have a bit of sleep disorder ( I was awake a few times over 24
hours, wide awake ) but that passed in about 2 months. I was off work
for 3 months. I have returned to work, have received a promotion, and
am doing very well . I do have some brain damage, my short term memory
is not good, I find that if i don't do things regularly, by the time I
have to do them again , I have to relearn how to do it. I did develop
high blood pressure after the operation and am on medication. I don't
know if your participant on the board has had his operation , but please
pass this along to him. I would like to reassure him, that brain
surgery , while serious, and mine was very serious due to the size of
the tumor, you can recover very quickly. I was operated on for 11
hours. I do have some memories of about 6 hours or so after surgery.
Yet I do not remember going to the OR!! My memory on the day of the
operation ends with me sitting on a stretcher waiting to go to the OR.
I would appreciate it if you would pass this information along to him
and if he has any questions whatsoever, please feel free to give him my
email.
I also had the top brain surgeon in Canada operating on me, thank
goodness for that since it was so serious.

Thank you Tom. I realize that this is not the reason that you have this
message board, and if not for my own experience I would not bother you.

Thank you again .

Barb"
Top of pagePrevious messageNext messageBottom of page Link to this message

Muskogee
Username: Muskogee

Registered: 5-2006
Posted on Monday, October 23, 2006 - 7:27 pm:   

James, I doubt you need another MRI, but it would be good to have a second doctor look at your current MRI (preferably a neuroradiologist, general radiologist, or neurosurgeon). This is something I would personally recommend doing, just to cover all your bases, but keep in mind it can sometimes be a bit tricky to set up, depending on specialist availability in your area and your insurance coverage.

The only reason you would need another MRI is if a second doctor concluded that your current MRI did not show him what he needed to see (I could go into a lot of detail with how this could happen, but it's unlikely, so I won't bore you).

Doug, I'm sorry abut your dental nightmare. It's an excellent example of the fact that "professional" does not equal "competent." I do hope you're feeling better at this point, and I hope you're through with that fiasco.

L2829tad, personally, I'm undecided on the issue of prayer, but there is a good chunk of research on the subject. The results are mixed, and there are flaws and confounding variables in a lot of the studies that I've seen. Larry Dossey (sp?) has written some interesting evaluations on the subject, and, while he has a bias towards prayer, I think he is generally fair in his discusion of the studies.
Top of pagePrevious messageNext messageBottom of page Link to this message

Douglas_oswell
Username: Douglas_oswell

Registered: 4-2006
Posted on Monday, October 23, 2006 - 10:26 pm:   

Muskogee, thanks. It wasn't a matter of competence, though, because he did a beautiful job on the wrong tooth--you should see the x-ray!

You know, this isn't the first time I've been injured by a dentist. There was one old guy I'd been seeing for sixteen years every six months like clockwork. It turned out that he was slowly going blind, and for the last four or so years I'd been seeing him I had a big cavity growing between a wisdom tooth and the molar next to it. He never caught it, despite x-rays being taken every other visit. He retired, I found a new dentist, and the first thing he told me was that both the wisdom tooth and the molar were past saving.

So far as prayer is concerned, I think that would be hard to quantify. But one might speculate that people who have religious faith are under less stress generally during troubled times than people who don't. If stress affects the immunity, that's probably significant. Additionally, the kind of people who are likely to be truly religious are also the kind of people who don't indulge in the types of behaviors that can lead to certain illnesses and/or exacerbate those illnesses when they occur.
Top of pagePrevious messageNext messageBottom of page Link to this message

Muskogee
Username: Muskogee

Registered: 5-2006
Posted on Tuesday, October 24, 2006 - 9:33 am:   

Yikes, Doug. Did he know how bad his vision had gotten? It's very difficult, at least in medicine, and I assume in dentistry, as well, to get doctors to stop practicing when they are no longer able. There is no good system in place to force the issue, and I've seen this lead to medical errors more times than I care to recall.

I had a horrible dentist visit when I was a wee child...the doc yanked out some of my deciduous teeth (that weren't loose) without novacaine or nitrous oxide...this is probably why I never had any interest in going into dentistry! Since then, I've had excellent dentists, and no major dental problems, so I can't complain.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Tuesday, October 24, 2006 - 6:27 pm:   

Barb, I appreciate you sharing your story. Your tumor was big! My tumor not even close to the size that yours was, however its causing alot of hormone problems, which lead to me getting very fatigued real fast. I'm glad to hear your doing well and considering the size of yours and the amount of surgery, I would say you sound like your doing great. Hope the best for you! Thankyou for caring!
Top of pagePrevious messageNext messageBottom of page Link to this message

Douglas_oswell
Username: Douglas_oswell

Registered: 4-2006
Posted on Tuesday, October 24, 2006 - 9:54 pm:   

Muskogee, the poor guy was evidently in a state of denial. It got to the point where he was using those dental-type magnifying spectacles even for routine stuff; that's when I decided I'd better get while the getting was good. I'm not sure what finally led him to give it up, but I'm glad he did, for his own sake if no one else's. Actually, he was a decent sort of fellow, personally, and I liked him.
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Thursday, November 16, 2006 - 3:29 am:   

I recently had blood tests and my testosterone and thyroid are improving due to the meds. I feel better as well!
Top of pagePrevious messageNext messageBottom of page Link to this message

Bomaye
Username: Bomaye

Registered: 1-2007
Posted on Tuesday, January 09, 2007 - 8:17 am:   

Any update on this?
Top of pagePrevious messageNext messageBottom of page Link to this message

James78
Username: James78

Registered: 7-2006
Posted on Tuesday, January 09, 2007 - 1:11 pm:   

You mean by me? I changed doctors and will be seeing a better one in February. I should know then what the next step is. I'm going to ask whether it would be better just to go ahead and remove it. I suppose I wont have another MRI until maybe March, thats just my guess. Its been a long dragged out process. I'll let you know with the changes.
Top of pagePrevious messageNext messageBottom of page Link to this message

Etphoto
Username: Etphoto

Registered: 6-2006
Posted on Wednesday, January 10, 2007 - 6:46 pm:   

James,

What ever happens I, along with everyone else on this board, wish you well.

ET

Add Your Message Here
Post:
Bold text Italics Underline Create a hyperlink Insert a clipart image

Username: Posting Information:
This is a private posting area. Only registered users and moderators may post messages here.
Password:
Options: Post as "Anonymous"
Enable HTML code in message
Automatically activate URLs in message
Action:

Topics | Last Day | Last Week | Tree View | Search | Help/Instructions | Program Credits Administration